December 10, 2015 Meeting Notes


DHS / DDS Waiting List Meeting

Tulsa, Oklahoma

Thursday – December 10, 2015

1:30 PM


Date of Application: February 2006

Attendees: 18

Represented in attendance:

8 – Parent or Family Member

4 – Self-Advocate (person with a disability)


1 – OHCA (Health Care Authority)

2 – News Media

Representing those on the Waiting List – 9

First Time Attendees – 8

Locations represented Stillwater, Norman, Jenks, Owasso, Sand Springs, Oklahoma City, Collinsville

Community agencies, programs or organizations represented: Center for Learning and Leadership/OK UCEDD, Oklahoma Disability Law Center, Sooner SUCCESS, Oklahoma Developmental Disabilities Council

Attendees were answered: For those waiting or those working with families who are waiting, name one thing of great importance the person needs right now? Or what is the person waiting for?


Immediate Need   Future Need
Access to therapy   What if something happens to us? What happens to our child?
Options for employment (more state funded employment slots   Who will care for them?
Diapers/Incontinence supplies   Establish Special Needs Trust, finding staff
Prescription medication over the Medicaid limit    
Adult care for working parents    
Care for my child when I need it (respite)    
Financial support    
In home help for adult w/DD (adult who is larger than parent and hurts himself and others)    
Few Hours of care/Companionship per week so I can run errands    



News Article Links:

Radio article:

Next Meeting – Oklahoma City

Thursday, March 10, 2016

Sequoyah Building – Capitol Complex

Room C-47 (Basement)

1:30 pm